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Dementia

For Details about working with people with Dementia:

CREATIVITY and the DEMENTIA FRIENDLY CHURCH.pdf 

Dementia Action Alliance Publications

Carers Call to Action.pdf

DAA- Top 20 checklist of services supporting family carers of people living with dementia.V2 doc.pdf

Dementia Doesn't Discriminate Leaflet

Information for LGB&T Older People and their friends and families: Dementia leaflet.pdf

Minutes of the Regional Dementia Action Alliance

Notes of DAA Quarterly Meeting 7 2 14.pdf

EJ - AS talk.pdf

Richard Talk.pdf

Alzheimers' campaigners logo

Help Give People with Dementia Access to the Support they need

Diagnosis rates for dementia are still shockingly low: less than half of people receive a diagnosis. This means that around 400,000 people do not have access to support, information, or treatments that can help them to live well with dementia. One key reason for this is a lack of awareness. You can help to change this. 

This month Alzheimer's Society has mailed 9,000 GPs our
Worried about your memory? information leaflets. These will be displayed in waiting rooms to raise awareness of the signs of dementia and the benefits of seeking help.

We are asking for your support to encourage as many GPs as possible to display the information. We need you to send an email to your Clinical Commissioning Group (CCG), who organise the delivery of healthcare in your area, to ask them to ensure GPs are making this information available to support people with concerns about their memory. 

Taking action is easy. Click the link below to send an email to the chair of your local CCG. It only takes two minutes. 

Take action

The Campaigns Team
0207 423 3500
change@alzheimers.org.uk 

What do dementia-friendly communities look like? New research from the Joseph Rowntree Foundation

A new collection of case studies from JRF pulls together simple examples of grassroots dementia-friendly work transforming communities across Yorkshire.

Projects are taking place in churches, mosques and gurdwaras, in shops, legal services and cafes, and in public services such as transport, museums, hospitals, trading standards, schools, libraries, and sports centres. Local 'champions' – extraordinary people in ordinary jobs who have seized the initiative and are leading change – are behind most of this work.

View the case studies to find out how Yorkshire is becoming dementia-friendly.

For more information please contact Philly Hare:  Philly.Hare@jrf.org.uk



Better Health 30: Black and minority ethnic communities and dementia: Where are we now?


While the looming challenges implied by our ageing population are well-known in the UK, a hidden problem within this picture is that of ageing black and minority ethnic populations.  Whilst the annual cost of dementia to the UK economy has been estimated to stand at £23 billion, and the number of people with dementia worldwide is expected to double by 2030, and triple by 2050, research into dementia remains underfunded.  In particular, very little research has analysed the impact of dementia on black and minority ethnic communities in the UK, in spite of substantial increases in the number of older people from these groups. Meanwhile, a growing body of evidence suggests that the prevalence of the disease is greater among African-Caribbean and South Asian UK populations, and that the typical age of onset for these groups is lower. 

In a new piece of research on the subject, David Trustwell argues that the implementation of the National Dementia Strategy has over-looked policy guidance on these issues, and that this failure is matched by a lack of awareness and understanding among communities of dementia and of the risk factors associated with it.

The report highlights the huge savings that could be made to the NHS, by reducing stigma in these communities, by enabling early diagnosis, and delaying the need for patients to enter residential care. It also advocates a role for culturally competent 'community dementia navigators', befrienders able to reach out to isolated older people and provide support to health professionals within communities.

Jabeer Butt, Deputy Chief Executive at the Race Equality Foundation has called the briefing, "A welcome contribution to the research and practice guidance surrounding dementia, and its focus on black and minority ethnic communities is timely, considering the increasing number of black and minority ethnic people in the UK who are now over the age of 65."

Dementia and isolation

A report this week from Alzheimers Society concludes that up to 180,000 people with dementia feel trapped in their own homes. 'Building dementia-friendly communities: A priority for everyone' shows that one in three people  with dementia surveyed only leave their homes once a week and one in 10 get out just once a month.

Alzheimer's Society report

Social Care TV:  Getting to know the person with dementia – the impact of diagnosis. 

Understanding the person with dementia helps to provide person centred care and support

This film introduces 6 people who have been diagnosed with dementia.  Understanding the person with dementia helps to provide person centred care and support.

Visit: http://www.scie.org.uk/socialcaretv/video-player.asp?v=gettingtoknowthepersonwithdementia

The Story of TellJoan - how a family used technology to help their mum with dementia: The Story of TellJoan.pdf

The Regional Dementia Action Alliance

The regional dementia Alliance is a group of organisations who Individuallycan make a significant difference to the lives of people living with dementia in the Yorkshire & Humber area. Together, as a coalition of major regional organisations from the public, private and charity sectors we can become a catalyst for social change.

Below are the contents of the information pack – with the addition of a document setting out the details of the National Dementia Declaration.

Regional Dementia Alliance TOR-Oct 2012.pdf

Regional DAA FAQs.pdf

Commitment to join DAA YH_1.pdf

2 Regional Dementia Declaration Action Plan Template.pdf

National Dementia Declaration.pdf

You can access all the Action Plans submitted by National and Regional Alliance members by going to: http://www.dementiaaction.org.uk/info/2/action_plans and further details about the Dementia Action Alliance project can be found at: http://www.dementiaaction.org.uk/

Newsletters from the Alzheimer's Society

Leeds Alzheimers Newsletter November 2013.pdf

Dementia:  Finding Housing Solutions

This new report from the National Housing Federation and the Dementia Services Development Centre at the University of Stirling, highlights how a range of housing models and services can impact positively on the lives of people with dementia, delaying more intensive forms of care for people with dementia, and preventing admission and readmission to hospital.

For more information visit:   Dementia: Finding Housing Solutions (pdf - 2.28Mb)


 

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